Sunday, July 6, 2014

Little Superman

Hello everyone!

We are happily 4 days post-op and doing great. Jameson has once again proven that he is stronger than we even imagined. He was able to get off the breathing machine within a few hours of being transferred to intensive care and from there has just gotten better and better. Today, he is really back to himself, only on Tylenol and wanting to move and roll all over the place! Its amazing how quick they can bounce back!

The surgery itself was somewhat complicated. Our surgeon, Dr. Irish, who has worked with Jameson since he was a month old, declared to me upon finishing that this was the most difficult Orchiopexy he had ever done. While the amazement of Jameson's complexities are something to marvel at, it is still hard that things can't seem to just go easy for him. The surgery's goal was to move both undescended testicles from the abdomen into the scrotum. Unfortunately, Dr Irish was only able to work with the right testicle and he had to completely cut off the blood supply in order to stretch it to where it needed to be. The decision was made to not attempt the left one at this time just in case the right doesn't get adequate new blood flow and has to be removed. We will keep our fingers crossed that this won't require more surgery in the future but more than likely it will and we will take it one step at a time. 

Along with little man's surgery he also had an ABR and an MRI. The MRI results we are still waiting on but the ABR we were able to get information on right away. Jameson has about 50% hearing in his left ear and no response in his right ear. We were definitely expecting something like this so it wasn't much of a shock. Now that we finally have these results we can move forward with a hearing aid in his left ear and that should help significantly. Our local early access agency, who provides some of his physical and occupational therapy, will also be providing a hearing teacher for him that will work on signing and communication. It will be challenging to add another weekly appointment but completely worth it. We are excited and grateful to all the help that Jameson receives through local agencies, they are amazing people that really care about special needs children and families. 

I hate to sound like a broken record, but I want to say thank you again to everyone for their continued love and support of our family's journey. The kind words and prayers we received while in the hospital were incredibly uplifting and got us through the tough times. Being able to use this blog as an outlet to communicate what we're going through is extremely helpful and healing....so I thank you all again for the support.  :)


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