Monday, October 30, 2017

Biopsy Results

Just got a call from the surgeon that did Jameson's biopsy last week and he gave us some great news. Little man does not have hirschsprungs disease! They were able to find the ganglion nerve cells that they needed to, which is fantastic. If he had been positive for hirschsprungs, we would've had to have intestinal surgery in the near future, so this was wonderful news to get on a Monday.


We will continue to work on Jameson's motility and constipation issues with medications, abdominal massage, and as much extra water as he can tolerate. Any time a surgeon calls and tells you no surgery is a great day!


Other than that, little man has been doing really well. We did make the decision to pull him out of school for the remainder of the winter season. He already has gotten a couple long illnesses with hospital stays in the last couple months, so I think this is the best thing for his health. However, this year we are working to get him set up at home and still have his teachers come out once a week to work on goals with him. He will also get to Skype into the classroom each day for story and song time, so hopefully this will make it feel like he's still getting to interact with the kids just in his own way. I think this will probably be what we have to do each year with the cold and flu season, since he tends to pick up anything and everything out there. But hopefully with this new homebound service we're working on with his school, it can still feel like he's a part of it.


We return to Mayo for a couple days of appointments the second week in November, and then hopefully get a nice break from Rochester for a few months. We've been there three times in the last 6 weeks and two short hospital stays at Blank Children's, so we're looking forward to a nice break from doctors for a while. Fingers crossed! Thanks for checking in on us and the continued love and support for Jameson and his journey!



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