A whole new adventure

Well, its been about a month since we got home from our 5 week hospital stay at Mayo Clinic, and Jameson continues to amaze us! The surgery went fantastic and the recovery was easy for him this time around. I have no doubt in my mind now that we 100% made the right decision with the tracheostomy. Admittedly, there is a lot more work for us, and some aspects of our lives are more difficult now, like being able to easily travel or go on an outing. First, we can no longer be in the car with him by ourselves. And secondly, he comes with a TON more equipment now every time we leave the house. I also haven't gotten comfortable with the idea of being more than a half hour away from our Children's Hospital yet, but I'm sure I'll get there eventually.


Even though there's been challenges, he has been thriving since coming home. Just in the last couple months, he's started to really grab things intentionally. The best part of that is he loves to grab faces, which just makes your heart melt every time! If I get right up near his face and talk to him, he will take both hands and grab at my cheeks, ears, eyes, anything he can get his fingers on. Its like his version of saying, Hi Mom...I love you too! <3


Our big news that will be coming later this month is that Jameson has a nurse! After 4 years of choosing not to do nursing care, we've finally decided it might be time to try it out. One big reason for choosing to do it now is that Jameson wouldn't have been able to go back to school without a full time nurse with him. (Just too much medical stuff for the staff to handle anymore) So if all works out, the nurse will go to school with him in the afternoons on Monday, Tuesday, and Thursday. Please send up prayers and good vibes that our first nursing experience goes well, and that the person they've hired for him is extremely compassionate and loving towards Jameson. I have faith that God is putting this situation into our lives for a reason, so I will trust that he has it under control.


Thanks for stopping by and checking up on us. Hope everyone is having a wonderful summer!