Wednesday, September 20, 2017

Blessed

Its been a while since my last blog, and I just wanted to give a quick update on how well Jameson has been doing. We have been completely blessed by God with how strong and healthy and happy he has been in the last month. His nurse, Olivia, has formed an amazing bond with him; and he's been able to enjoy going to preschool 3 days a week in the afternoons. None of this would've been possible without our decision to go ahead with his tracheostomy surgery and start nursing care. His lungs have been getting stronger and he can sleep comfortably without the constant need for suctioning or oxygen.

We have been able to do more fun adventures and check things off our bucket list. Jameson took another trip to the zoo last month, and had an amazing time. Also, last week he practiced some putting with grandpa and even hit a hole in one! If you haven't seen the video on facebook, make sure to check it out! :)

At the end of October, we have another trip up to Mayo for appointments and tests. He will finally be getting the rectal biopsy to test for Hirschsprung's Disease. This will test the nerve function in his colon to see if part of his motility and constipation issues have been from the nerves not working correctly. If it tests positive, we will be having some long and difficult conversations with his team about how to proceed. There is no easy solution, and all treatments would involve major surgery, so we will cross that bridge and make those decisions if/when they come.

Thanks for stopping by and continuing to follow along with Jameson's journey. We appreciate all the love and prayers as always!





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