Hope everyone had a great holidays! Thought I'd share some updates with our friends and family before the end of the year. On Christmas Eve Jameson's nurse Kelly, who stops by once a week to check his weight and vitals, weighed our little man in at 13 lbs 3 oz!! This was great news as he's been stuck in the 12 lb range for a while now so we were excited for this bump. Anyone who has seen Jameson would definitely say he looks healthy and chubby like any other baby even though technically he has never been on a growth chart. He's consistently been at <1% for all measurements since he was born, but he's proportionate which is what the doctors seem to care about. When we got his official CDLS diagnosis, we found out they actually have their own growth chart and Jameson is at the 95th percentile! Greatest present you could ask for!!!
In other news, we are officially scheduled for our helmet on new years eve. I'll take Jameson down to Hanger Prosthetics around 1 PM and we'll be getting the final fitting and taking the helmet home with us. From there, it'll be quite an adjustment at first. One hour on, one hour off and so on until he is wearing it 23 hours a day. It will definitely be hard to watch him struggle with it in the beginning, but I know the more vigilant we are about wearing it, the less time he'll have to wear it in the long run. And its not like we get a second chance to do this, babies heads will only be soft and pliable enough for the first year to be able to do this adjustment, so this is our only shot at it. Make sure to send us prayers for strength so we can help little man get through the first couple weeks!
Wishing everyone a wonderful new years and will give more updates and pictures when we get our helmet. :)
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