Where to start.....well, we are now over 3 weeks since Jameson has been able to wear his cranial helmet. This is a huge bummer as that helmet is really time sensitive as far as how long it will work for him. We obviously want to avoid any sort of jaw or facial reconstructive surgery in the future so the helmet is a must. We started on a new antibiotic for the blister on his head on 2/7 and its already made a huge difference. It looks better in the last few days then the last few weeks so prayers that he can get his helmet back on next week.
We had our 9 month check up last week and were happy to get some updates from Jameson's primary doctor about what our next 6-12 months will look like. We are doing another hearing screening in March to see if little man's hearing has improved and where we should go with that. We have noticed his hearing seems to be getting better over the last few months so hoping we don't have to worry about hearing aids or a cochlear implant. Jameson also needs to have surgery by 18 months old to move his testicles out of his abdomen. Unfortunately, it can be quite common with genetic disorders for this to happen to babies and if they aren't moved out of the abdomen by 18 months then there is an 8x higher risk of testicular cancer. Along with surgery, we want to have his MRI done simultaneously so that he doesn't need to be under anesthesia twice.
We definitely have another big year full of medical adventures coming up for little man. While it can feel like we're always going at full speed it's worth it to see the small bits of progress he makes every day. We really do appreciate everyone's continued support and love for our little guy!
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