As most of you probably saw on Facebook, little man has gotten his sun goggles and they're working like a charm. I cannot express the feeling of being able to finally take him out into the world after two years of being inside. Even something as simple as sitting out on the back porch or sitting in the grass with little man being able to look up at the clouds is surreal. I was so happy to be able to share his first experience being in a swimming pool at our family reunion with everyone cheering him on. Seeing these memories made for him through other people's eyes is also an amazing gift and makes you incredibly thankful to God.
We continue to work hard towards giving Jameson the best life possible, full of adventure and love. We also continue to work hard at giving him access to the best doctors and treatments available. Today we are heading back to the University of Iowa for a visit with Pulmonology. She will be taking a good look at his lungs and breathing. September we have more big appointments with his Nephrologist and Urologist who watch his kidney and bladder function. Then in October we are back to MN for another inpatient stay while they watch him on vEEG to look at seizures and he'll be having another MRI. We are also still waiting on results back from his Whole Exome Sequencing which will be very exciting when we get those! So another busy few months but that is the life of our tough little man!
As always, we appreciate everyones love and support. We cannot thank you enough for all the kind words and messages. It's because of all of you that we have as much strength as we do to help Jameson fight his battles and have a wonderful life. Thanks again!
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