There is still a lot of things developing and not yet decided but at least it's a way to give everyone an idea of what's been happening. :-)
We were at the University of Iowa Children's Hospital on Monday and Tuesday last week for some testing and doctors appointments. On Monday, Jameson had an EEG and a urodynamic study. The EEG results came back showing that little man is indeed having seizures, but luckily the kind of seizures he's having at this time aren't too bad. Our neurologist gave me a list of some different kinds of anti seizure meds we could try and what their potential side effects could be. I'm going to be doing a lot of research and from there decide what kind of med to try and how long until we start him on it. I don't like putting him on more medication that seems unnecessary but I also don't want things to get worse. Luckily, what hes experiencing right now doesn't seem to have a negative impact on his quality of life. :-)
The other part of our trip was with urology and dealing with little man's bladder and kidney issues. With the test they did last week, he was officially diagnosed with a neurogenic bladder. (I'll dedicate another post to explaining this better as it's complicated but very interesting.) The biggest problem with his neurogenic bladder is that he isn't fully emptying his bladder and that excess pressure builds up and affects the kidneys. So in the end, the decision was made to move forward with surgery. It was an extremely difficult choice for us to make, but in the long run it is the most realistic thing to do. If we don't get this under control soon, his kidneys will eventually fail and that only leads down the road to dialysis or a kidney transplant. If we can do a bladder reconstruction for him, we can take away the pressure on the kidneys and keep moving in the right direction. More to come on this as well.
We'll I guess that ended up being longer than I planned but I know people are continually praying and thinking of our little man and we truly appreciate it. Those prayers really do work as he's already been making such amazing progress and will continue to do so as we keep trudging ahead. Thanks everyone! :-)
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