You can't control everything

February 28th, 2015 was not a good day. It's seems slightly ironic that on the day that is nationally recognized as "Rare Disease Awareness Day", Jameson's brain decided to have the worst seizure it's ever had. After almost 2 years of life, that was the day everything changed. Witnessing your child have a seizure and stop breathing in front of you is something I can't really describe and would never wish upon anyone. To say that I'm incredibly grateful to the paramedics, emergency room personnel and everyone that prayed for him that day is an understatement. It truly means more than you all know. 

Trying to go back to everyday life after something like that is difficult, as you can imagine. But as the hours turned to days and now weeks, I've realized you have no control over it. You work with doctors and try to find the best medications and treatments you can....and the rest you leave to God. 

I'm happy to say that Jameson is doing amazingly well, considering everything he's been through in the last few months. This weekend, he laid on his tummy and lifted his head for almost 30 seconds! It was one of the most beautiful things I've ever seen; the pride on his face for being able to hold it that long. We've been accepted by a specialized epilepsy group up in MN, so Jameson will be seeing a new group of doctors that work just with complex seizure cases. We're incredibly excited to get a new perspective and see some of the best doctors in the country to help him. 

As always, I want to extend my heartfelt gratitude for everyone that continues to pray and think of him. I have no doubt in my mind that he was put on this earth to touch each and every one of us. I feel very lucky that our family was chosen to care for such a beautiful soul. :-)