Living in the fast lane

Where does the time go? Sometimes I feel like I'm in a whirlwind and then POOF! It's almost March! Hard to believe it's been almost 2 months since little man's surgery and only 6 weeks from our much anticipated trip to the Children’s Hospital of Philadelphia. I feel like just yesterday we were meeting with our geneticist and getting the CdLS diagnosis...now here we are, so much more knowledgeable and better equipped to handle whatever life throws at us!

I'm beyond happy to report that Jameson has been doing a lot better the last couple weeks. Other than a little virus, he has been sleeping better and is back OFF the pain medication. Yay! He is still sleeping in mom's bed instead of his crib...but eh, I figure you take what you can get. I'm also about 99% sure that he really just enjoys cuddling up next to mom or grandma if she's staying with him. Who can be upset at that? ;-)

We have a big week coming up at the University of Iowa. Little man is seeing his urologist, neurologist and his neurosurgeon. He will also be having another ultrasound to check on his kidneys since surgery, an EEG to monitor his seizures and another MRI scan to check the extra fluid in his brain. It will be busy but should be pretty stress free. I've stretched it out over two days this time so hopefully we don't feel rushed. I will give updates on everything once we get them.

Thanks everyone for stopping by, hope you're staying warm and out from under the snow!