As you all know, it's been a doozy of a month for us with little man. He had his vesicostomy surgery along with a second orchiopexy done on January 8th at the University of Iowa Children's Hospital with our wonderful urologist, Dr Cooper. He was in the PICU a few days and then we were able to come home. He did very well during the procedure, as always, but this recovery has been by far the toughest on him of the three surgeries he's had in his life. I don't know if its because he's getting older and taking longer to heal...or if this surgery was just so much more intense, but little man has had a hard time getting back to himself. First, we had to deal with the immediate pain of his incisions...then it was getting his bladder spasms under control...then once that was under control he got an infection around his vesicostomy that we're still working on clearing up....and now, he's decided he doesn't want to sleep through the night anymore. I think it's probably because he's just so out of whack; it takes time to get back to a normal schedule. In the meantime, mom and grandma are very tired from splitting shifts! Haha :)
We will be going back to the University of Iowa in a couple weeks so that little man can get another brain MRI and see his neurologist and neurosurgeon. The point of this is to check the levels in his brain again to make sure the cerebrospinal fluid isn't accumulating too quickly. We are also seeing his orthopedics doctor again to talk about his spine. I know it seems like a lot, but you just do what you have to do. Jameson is a tough little soldier that has been through a lot. I'm hopeful that as we can get a lot of his medical issues under control, we will see less and less of his many doctors.
I wish I had more happy news to share with everyone, but unfortunately it's not always the reality of the current state of things. I know everyone is praying and rooting for him so I'm always striving to make sure I keep you all updated. Other than the sleeping and frustration from that, little man is otherwise doing very well. He is playing with toys again and we're working on getting him back into his weekly routine of therapy and appointments. He is so incredibly loved and supported by you all and we so appreciate it!!!
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