The biggest thing to happen recently in Jameson's world was an amazing trip to the Omaha zoo for his 3rd birthday! :) While it can still be tricky with his light sensitivity to get him outside at a place like that, we all had a good time. He especially enjoyed the indoor monkey houses and the aquarium. This is our second zoo trip in his life and we always make a point to get a stuffed animal of whatever he seemed to have the most reaction to. Last time it was the red pandas and this time it was the chimpanzees. :)
The other big thing going on in our lives right now is preparing for our upcoming trip to the Mayo Clinic. Its going to be a VERY busy week with some long days but my hope is that we can just transition all of his care here and really finally feel like we have a team of doctors that are communicating with each other about how to give Jameson the best life possible. Our first trip will include appointments with Pulmonology, GI, ENT, Neurology, Neurosurgery, Urology and Genetics. He will have another EEG, sleep study, swallow study, chest CT, upper endoscopy and a 24 hour PH probe testing for silent reflux.
The second trip won't be until probably closer to the fall and that will include Nephrology, Endocrinology, Ophthalmology, Physical Medicine, and therapies. Plus whatever follow ups from the first set of appointments. While it feels like a lot, it will be worth it to get into the Mayo Clinic system and have every single one of his doctors in one place talking about Jameson and how each of their departments can work together.
Thank again for stopping by and checking in on little man. I will plan to update everyone in a few weeks once we've been to Mayo and share what our experience was like.
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